National Hospice and
Palliative Care Month and
National Caregiving Month
November is National Hospice
and Palliative Care Month
and National Caregiving
Month!
Tell Us What Action Ideas
You Are Implementing
Coalition Spotlight
Artist Incorporates
End-of-Life Issues In Her
Work With Fabric
Hold An Advance Directives
Event At Your Church
Join The Discussion In Your
State On The Finding Our Way
Discussion Board
New Fred Friendly Seminar on
Caregiving to Air Late
October and November
November
is National Hospice and
Palliative Care Month and
National Caregiving Month!
Take advantage of this
designation by planning
events highlighting issues
surrounding hospice,
palliative care, and
caregiving. Here are some
ideas for your coalition
Request a
Mayoral proclamation of
“Help a Caregiver Week,”
with ideas about how people
can help
Hold a forum
for employers about
caregivers’ needs
Conduct
“Caregiving 101” classes to
help family members learn
what to expect and what to
do
Encourage
your local hospice to hold
hospice open houses and
public events
Hold a
hospice event for family
practice/internal medicine
staff
Encourage
your local hospice to hold
recognition events for their
volunteers
Ask your
hospital to hold “Ground
Rounds” on palliative care
Ask local
TV/radio talk shows to
feature hospice
representatives during the
month of November
Create a
directory of local hospice
and palliative care
resources
Information
and other action ideas for
your coalition are available
in detail in the Finding
Our Way: Living with Dying in
America Community Action
Guide. To receive copies of
this booklet, email us with
your name and mailing address
and the quantity you are
requesting at
steeringcommittees@bballard.com
with the subject line
“materials.”
Tell Us
What Action Ideas You Are
Implementing
If you already have copies
of the Community Action
Guide, tell us which
activities you are
organizing and if the
suggestions made in the
guide are useful.
Additionally, we want to
know what activities you
have planned around the
themes of grief and
caregiving. Email us
your comments at
steeringcommittees@bballard.com
and we will share them with
other coalitions around the
country. (If you don’t have
copies of the Community
Action Guide, let us know
and we’ll send you some!)
Coalition
Spotlight Correction
In our last e-newsletter, we
reported that the local
paper in Merrill, WI that
created a link to the
Finding Our Way website
was unwilling to run the
series. We made a mistake.
The paper that was unwilling
to run the series is a
different one from the
region. After being turned
down by that paper, the
local coalition’s leader
promoted the series by
writing about the Finding
Our Way website in her
monthly column in that
newspaper. We apologize for
any confusion and are
impressed with the creative
way this coalition managed
to get the series mentioned
in the newspaper anyway!
Gateway End-of-Life
Coalition
The Gateway End-of-Life
Coalition in Saint Louis, MO
is keeping busy with several
events planned through
January. In November,
National Hospice and
Palliative Care Month, they
are planning several
“Medical Directive Events.”
Additionally, the coalition
is planning on holding these
events in January,
encouraging people to sign
directives as their “New
Year’s Resolution.” In
November, they plan to visit
several senior housing
developments and provide
notaries and social workers
to help residents complete
medical directives. At one
such facility, they have
been invited as the “keynote
speaker” at a special
Thanksgiving dinner event.
In addition to their medical
directives initiative, the
coalition has an ongoing
speakers bureau. A panel of
professionals will speak to
social workers and marketers
in long-term care in St.
Louis on November 13. The
coalition has also recently
partnered with the Hospice
Foundation of Greater St.
Louis to co-sponsor some
local educational events.
Great Job Gateway
Coalition!!
Caring Community
Caring Community in
Philadelphia has
successfully encouraged the
Philadelphia Inquirer to run
the entire Finding Our
Way series. They have
supplemented the series by
working with WHYY, their
local PBS station, to re-run
On Our Own Terms: Moyers
on Dying. Additionally,
the coalition has developed
talking sheets and local
stories to accompany the
series in the Inquirer and
are hosting discussion
groups in various venues
including the Celebrate-Your
Ave Expo that was held on
October 3, 2001.
Artist
Incorporates End-of-Life
Issues in Her Work With
Fabrics
Artist Deidre Scherer has
been working with fabric and
thread panels since the late
1970’s. Her work focuses on
aging and mortality,
highlighting the stories of
elders and mentors in her
community. She also often
works with hospice or
subjects in community
nursing homes. Deidre’s new
series is entitled
“Surrounded by Family and
Friends” and portrays the
kinds of relationships often
found at the end of life. In
October of 2002, the series
will be exhibited at the
14th International Congress
of the Terminally Ill in
Montreal, Canada.
Hold An Advance
Directives Event At Your
Church
The following are excerpts
from a report from Last
Acts’ Sharon Latson in
Chicago. Sharon helped
organize a successful
advance directives signing
event at her church. Thanks
for the report Sharon!
With Sharon’s help, Deacon
Rosalyn Priester, of Trinity
United Church of Christ in
Chicago, IL, contacted Aging
with Dignity and ordered
1,000 of the “Five Wishes”
documents, customized them
with quotes from Trinity
staff and community
residents and added the
phrase "Embracing Amani" on
the front of the cover.
Embracing Amani means "The
Ultimate Healing and Peace
of Atonement with God".
Deacon Priester announced
the Advanced Directive Day
Workshop in the church
bulletin, on the website,
via the phone, mailings and
in the church newsletter.
The Advanced Directive Day
workshop was held on Friday,
October 5, 2001 from
7:00pm-9:00pm. About 50
residents from the community
and members of the church
attended the workshop. They
viewed the training video
and filled out the document.
Community residents
continued to engage in
conversations on end-of-life
care well into the evening.
If you would like to
organize a similar event in
your church or community
center, check out the Aging
With Dignity website:
http://www.agingwithdignity.org.
Join The Discussion In
Your State On The Finding
Our Way Discussion Board
The Finding Our Way
website offers you and your
coalition the opportunity to
join others across the
nation and in your state in
a discussion about the
series, end-of-life issues,
and your activities.
Remember, this website is
viewed by people that none
of us know as well as those
already in our “circle of
friends.” It’s a great way
to publicize your work and
it’s visited by more than
2,700 people each day. Maybe
some of them are in your
community!
New Fred Friendly Seminar
on Caregiving to Air in Late
October and November WHO CARES: Chronic Illness
in America, a PBS program
airing in late October and
November (air dates vary by
public television station)
explores the critical health
care challenge of chronic
illness. Funded by The
Robert Wood Johnson
Foundation, an extensive
outreach campaign is planned
to inspire community
dialogue around issues such
as how to improve care,
enhance quality of life, and
provide choices for people
with chronic conditions.
This is another excellent
opportunity to mobilize your
coalition and maintain a
focus on how we can improve
our health care system. Each
year chronic illness strikes
more than 50 million
American lives and affects
over 20 million caregivers.
As with end-of-life care,
our health care system is
not well designed to address
chronic illness. WHO CARES
project brochures in bulk, a
highlight reel, and a
12-page discussion guide are
all available to help you
use this program in your
community.
WHO CARES: Chronic Illness
in America is a Fred
Friendly Seminar hosted by
NBC DATELINE correspondent
John Hockenberry. You can
find out when it will air in
your community by logging on
to the project website at
www.pbs.org/fredfriendly/whocares.
This website includes an
outreach resource toolkit as
well as extensive
information on the issues.
Many community coalitions
are already participating in
this campaign, especially
when public television
stations are broadcasting
WHO CARES in conjunction
with rebroadcasts of ON OUR
OWN TERMS. For support and
information, contact Rose
Lynn Marra at Kelly &
Salerno Communications. Rose
Lynn may be reached at
770-438-1778 or
roselynn@kellysalerno.com.